21 years ago today something happened that changed the rest of my life. I was 31 years old, in my 9th year with TD, in my 4th year of marriage. 21 years ago today Mackenzie was born.
We did not know then that she only had a 10% chance of living to age 3 and < 1% chance of surviving her teen years. Despite this, today, Mackenzie turns 21.
Her condition remains degenerative and terminal. Seizures claim her around the clock. She can no longer talk. She gets about in a wheelchair. Degenerative conditions degenerate—that's just how they work.
There were no courses for making a career or marriage thrive while the heart inside is torn apart, little by little, every day. So, in 2015, I self-published a book on this topic. Countless readers shared their own stories with me in the years that followed. Through them I learned that grief, loss, and suffering are universal experiences. Those untouched are simply too young.
Last year, Paper Stone Press agreed to republish the book. It will be released on April 29th as Even the Monsters. Living with Grief, Loss, and Depression: A Journey through the Book of Job (2nd Ed).
I will share more about this in the coming weeks.
In the meantime, Happy Birthday Zee. Every day I get to hold you is a good day. You taught me not to take those days for granted.